Soakings and Seizures: A Day in the Life

Oh, what a morning. Afternoon. Would some people call half-five evening? Probably.

Whatever. As far as me and my sleep disorder are concerned, it’s morning.

I woke up an hour ago in the middle of a thunderstorm. My dog stretched and toddled over to me, then keeled over in one of his seizures. I lifted and cradled him to my chest until it passed, tried calling my husband in the bed next to me.

Unresponsive. He’d, evidently, had a seizure too.

I watched him for a minute, figuring it would be a while before I could reach him. The rain was still hammering down.

I went downstairs, puppy still in hand, and got him settled in his downstairs bed with some food. Next was the super fun part. I had to go out in all of the rain to fetch the wheely bin, praying I’d find it in the alley.

Our last bin was stolen. The one before that was blown up by some kids with fireworks.

It has not been an easy month.

I went out, got soaked, but did retrieve the bin. A small win, but important.

Hands washed and feet wiped, I went back to check on Steve. He was vaguely aware of my presence. The seizure had passed and now he’s into the extreme fatigue of recovery. Another good thing.

It’s still ridiculously warm, despite all the rain. The heat makes it all worse: my health, Steve’s, and the dog’s.

On my way back downstairs again, I can see the cat has destroyed more wallpaper. Great. She’s set about stripping a whole section, no matter how many deterrents we try or alternatives we offer.

Steve and I are supposed to be getting ready to go to Slimming World but it’s clearly not going to happen. Another week missed. Another fee incurred. But maybe it’s for the best. We’re in between payments again and can’t really afford it right now.

I need to go out for milk but am already feeling the day weigh me down. I’ve felt ill for a month– no, wait. Backtrack. Clarify: I’ve felt ill all my life. This past month, maybe two, I’ve felt worse than usual.

This would have been another day for not leaving the house at all, but I must get that milk.

The funny part is, this is me taking a break. I’ve been ‘taking it easy’ for the past few days. Which means still dealing with all this, and housework – dishes, laundry, cooking – but not really writing or editing. I haven’t had the brainpower.

When people ask me how I am, I say I’m “getting there.” I don’t know what else to say. I love my work, when I can get to it, I love my husband and my pets. Our home is the loving, accepting atmosphere I’ve always craved. On the whole, I do not have a bad life.

A lot of the time, though, this life is made of days like these. I’m getting through them. This isn’t me complaining, really, about any of it. I do want people to understand, however.

I don’t live a conventional life and I’m fine with that, but sometimes I do want to open up a window and show people what it’s like.

This is it.

On Being Strong

There are many different definitions of strength. Most of them, I find, are inadequate. Strength isn’t the absence of fear or weakness, and it isn’t something purely physical.

I’m partially thinking about this because I’ve been rewatching Buffy the Vampire Slayer season seven, these past few nights, but also because strength is something I’m constantly striving for. I have to remember that being strong is also not the same thing as being hard on yourself. I mean, sometimes it is, but not all the time.

I’ve done a lot of hard things in my life so far – fought through a fair few difficult situations – and where I am now, I have more hard things in front of me.

I am fighting against my body and the medical condition I have to get pregnant.

I am trying hard to lose weight – something that even people without PCOS struggle to do.

I’m also trying to secure a publishing deal.

These are big things. A lot of people much better than me have spent big chunks of their lives tackling one or other of these. The fact that I’m struggling with them is not a sign of weakness. Or, maybe it is, but that weakness isn’t necessarily a bad thing.

Sometimes, I gotta cut myself some slack.

I cannot be top of my game, doing my very best, all of the time.

Being strong is not an absence of weakness, it’s accepting the things holding you back – the things failing and falling apart – and going on, regardless.

I am both weak and strong. That’s okay. The same is true of all people, even slayers. I just need to remember that.

May Health Update

I had a blog post about publishing planned for today, but I’m feeling pretty rubbish and wanted to talk about that instead.

I’m on new pills from the doctor, and on new, special multivitamins, taking industrial-strength folic acid; I’ve cut out pretty much all of my caffeine intake, and I’ve cut way back on dairy. Which means I’ve actually stopped taking tea and cereal for the most part, because the coconut milk alternative I’ve been using has kinda put me off it, and the decaf tea bags we have aren’t great.

At this point, I don’t know if my diet is better off or worse, and I’m not sure which of these things is making me feel ill – maybe a combination of all of them, or maybe it’s psychosomatic because I’m trying so hard to get pregnant and feel like I’m getting nowhere – but I’m just so tired and tearful.

On top of that, I feel guilty for being a moany bint.

So things aren’t great. There’s not much of a point to this post other than to get that off my chest, but I feel it’s important to talk about life’s struggles.

Is anyone else having a rough time of it? Does anyone want to send me cute kitten photos? Let me know!

2019 Goals Part Two: Summer

Back in January, I changed things up a little and only set myself one goal for the entire year. That was my 2019 Goodreads challenge to read sixty books. By the time this post goes live, I should have completed twenty-two of those, which means I’m on track.

With regards to other goals, I wanted to focus on things in the shorter term so I decided to plan things a few months at a time and no further. Although it’s not fully accurate, for the sake of simplicity, I’ve split my 2019 into three segments which I’m calling Spring (January to April), Summer (May to August), and Autumn/Winter (September to December).

My Spring was pretty good, all in all. I had my second wedding anniversary in February and my thirtieth birthday in March. I spent a lot of January catching up on all of my accounts for my freelance work so I could get my tax return in before the deadline (which I did!). The rest of that month and part of February was spent doing voluntary work and, when I stepped back from that, I threw myself into decluttering the house following the Kon Mari method.

It felt good to get rid of things and, in the process, simplify my life (simplicity being a big theme of mine, the past few years). The end tally was: 4 bags of clothes (between my husband and I), 1 bag of bedding, 1 [big] bag of books, 8 boxes of komono/miscellaneous items and an untold number of trash bags and recycled things. I also paired down a lot of my social media profiles. Continue reading

On Believing Abuse Victims

I have just finished listening to the audiobook of Educated by Tara Westover. Once I started, I found myself taken over; not able to do anything else until I got to the end. It’s twelve hours long and I finished it in a day.

For those who aren’t familiar with the book, it’s a memoir: a personal account of an unconventional and abusive childhood alongside the story of how, as an adult, Tara came to terms with what happened and escaped the life of her family via going to college and getting an education.

This blog post isn’t about the book, as such. I gave it five stars on Goodreads and wrote a sentence-long review in which I said I had a hard time summing up my thoughts and feelings about the book, but that I knew it was important. The reasons I can’t sum up my thoughts and feelings is partially because I have so many of them and partially because those thoughts and feelings are tied to my own experiences of childhood. While my experiences and Tara’s differ in circumstances and severity, so much of it is similar. Someday, I plan to write a book about my own set of circumstances growing up. I have a title picked out, and an epigraph. I have started certain sections, but I am by no means ready or able to unpack much of it even yet.

This post isn’t about the book or my experiences, or a comparison of the two. That’s just a preface to what I want to say about some of the negative reviews Educated has on its Goodreads page.

Now, for the most part, the book has had an extremely positive reception. The negative reviews are few and far between. I probably shouldn’t focus on them, but it physically hurt me to read them and I need to talk about why. Continue reading

Goals for my Thirties

I turned thirty in March. As of right now, at the start of May, I have written two-and-a-half novels. When I think of what I want to achieve in the next ten years, those novels play a key part.

I’ve said before that, in the past, lists of what I wanted to do with my life quickly became lists of all the books I want to write. That hasn’t changed. Most of the goals I have are career based.

Here are the few that aren’t:

  • Learn to Drive
  • Learn Piano
  • Have a Baby

That last one’s pretty big. The first one is dependant on whether my dyspraxic self is actually safe to drive, and the middle one doesn’t really matter, in the grand scheme of things, but it’s still something I aspire to. Continue reading

On Accessing (and not accessing) Healthcare

I’m gonna start this post, right off the bat, by saying I am in full support of the UK’s National Health Service and all they do. It’s a crime (or at least it bloody well should be) the way it’s been systematically underfunded for years, leaving waiting lists ridiculously high and people, quite frankly, fucked.

Today’s post is a personal one, because today, I am one of the people being fucked over.

I need to rant and vent, but I don’t want anyone to get the wrong idea. The problem isn’t truly the NHS, it’s those bastards in parliament trying (and in many cases succeeding) to gut it.

Disclaimer made, let me now rewind to explain why I’m upset.

I’m just off the phone with Occupational Therapy, who have told me – in essence – that they can’t help me. I had gone to my GP about a long-standing issue I had, seeking her advice for the best way to go about getting officially diagnosed and accessing help.

She told me I needed to self-refer to O.T.

Now that I’ve tried that and gotten nowhere, I am – precisely – nowhere with zero clue of what to do next. Continue reading

Summary of the Last Ten Years

I’m about to turn thirty. I’ve been saying that, with increasing degrees of panic, since I turned twenty-six, but now it’s just ’round the corner – on Saturday.

That’s right. In a few days, I will have been alive a full three decades and will be starting on my fourth.

I’m still not sure it’s fully sunk in yet, but I’m at least freaking out less.

Part of me knows the angst surrounding getting older is nonsense. Numbers are arbitrary and nothing can be done about them anyway, so what’s the fuss? That’s the logical part of my brain. The illogical part is hiding in a cupboard somewhere weeping. So long as it’s not at the forefront right now, I don’t mind so much.

Socially speaking, I think the pressure put on women, in particular, to stay young (or, at least, stay looking youthful) is fascinating (not to mention entirely unfair and infuriating), but I’m not going to get into that here. It’s a discussion I’ve subjected my husband to several times already, and you clicked on this post to read about the misspent years of my twenties. I wouldn’t want to disappoint, so here’s a bullet-pointed list.

  • Ten years ago, way back in March 2009, I was living in Lincoln and had been for about a year and a half. I was nearing the end of my second year at university and swiftly coming to terms with the fact that I had picked entirely the wrong course. Despite uncertainty over what to do next, however, I was fairly happy. I had a good social life and was living in a decent place. 2009 was the year I met my best friend and was, up until more recently when I found love, one of the happiest years of my life.
  • 2010, by comparison, was hell. Continue reading

Afeared Afresh

Back in February last year, I wrote a blog post aptly titled ‘The Fear‘ in which I talked about how, after several years of trying to finish a novel, I was on the verge of doing just that and was scared sh*tless. Said fear was making me drag that last little bit out longer than it ever needed to be.

Writing the blog post helped.

I finally finished writing the book.

I got even more positive feedback – my writing mentor said it was “good to go.”

It was May by that point. I sent the novel out to an agent that very month and considered the issue resolved. I had got past my hesitation. All was good, right?

Well, I submitted to a second agent in July and then, inexplicably, stopped.

To be completely honest, I had gotten so caught up with other things, I hadn’t even realized I’d stalled again. When I opened my list of agents recently, I was horrified it had been so long since I had contacted any of them. Then, when the horror wore off, I found that old fear hiding underneath.

I hadn’t dealt with it, I’d just put a lid on it and left it on a shelf for a while. Continue reading

On Letting Go (and Holding On)

My best friend and I used to squabble a fair bit. At the point in my life when we got close, during university, I was socially underdeveloped and incredibly oversensitive. My friend had street smarts but sometimes lacked empathy.

We’d squabble, but we’d always sort it out. It was never long before we’d be sharing jokes again because, despite our differences, we loved each other.

We still love each other, even though she’s living on the other side of the world and we haven’t seen each other in literal years.

She’s still my best friend (outside of my husband). She’d probably hate how soppy this all sounds, but our relationship is actually stronger now than it ever was back when we saw each other every single day.

But that almost wasn’t the case.  Continue reading