Soakings and Seizures: A Day in the Life

Oh, what a morning. Afternoon. Would some people call half-five evening? Probably.

Whatever. As far as me and my sleep disorder are concerned, it’s morning.

I woke up an hour ago in the middle of a thunderstorm. My dog stretched and toddled over to me, then keeled over in one of his seizures. I lifted and cradled him to my chest until it passed, tried calling my husband in the bed next to me.

Unresponsive. He’d, evidently, had a seizure too.

I watched him for a minute, figuring it would be a while before I could reach him. The rain was still hammering down.

I went downstairs, puppy still in hand, and got him settled in his downstairs bed with some food. Next was the super fun part. I had to go out in all of the rain to fetch the wheely bin, praying I’d find it in the alley.

Our last bin was stolen. The one before that was blown up by some kids with fireworks.

It has not been an easy month.

I went out, got soaked, but did retrieve the bin. A small win, but important.

Hands washed and feet wiped, I went back to check on Steve. He was vaguely aware of my presence. The seizure had passed and now he’s into the extreme fatigue of recovery. Another good thing.

It’s still ridiculously warm, despite all the rain. The heat makes it all worse: my health, Steve’s, and the dog’s.

On my way back downstairs again, I can see the cat has destroyed more wallpaper. Great. She’s set about stripping a whole section, no matter how many deterrents we try or alternatives we offer.

Steve and I are supposed to be getting ready to go to Slimming World but it’s clearly not going to happen. Another week missed. Another fee incurred. But maybe it’s for the best. We’re in between payments again and can’t really afford it right now.

I need to go out for milk but am already feeling the day weigh me down. I’ve felt ill for a month– no, wait. Backtrack. Clarify: I’ve felt ill all my life. This past month, maybe two, I’ve felt worse than usual.

This would have been another day for not leaving the house at all, but I must get that milk.

The funny part is, this is me taking a break. I’ve been ‘taking it easy’ for the past few days. Which means still dealing with all this, and housework – dishes, laundry, cooking – but not really writing or editing. I haven’t had the brainpower.

When people ask me how I am, I say I’m “getting there.” I don’t know what else to say. I love my work, when I can get to it, I love my husband and my pets. Our home is the loving, accepting atmosphere I’ve always craved. On the whole, I do not have a bad life.

A lot of the time, though, this life is made of days like these. I’m getting through them. This isn’t me complaining, really, about any of it. I do want people to understand, however.

I don’t live a conventional life and I’m fine with that, but sometimes I do want to open up a window and show people what it’s like.

This is it.

Weight and Waiting – Health Update

When I set my resolutions for this year in December last year, I said I wanted to eat “a bit more healthily. I’m not intending to go on a diet, exactly, but I do want to take better care of my body.”

Well, there was a reason for that.

In November last year, I discovered that a lump I’d had for years was suddenly bigger. I went the GP and she told me I had a cyst. No problem, she’d put me on a waiting list to get it drained and/or removed.

So I went into 2018 knowing that I was facing minor surgery. I’d also had a conversation with my husband just after his birthday in the middle of December in which we decided it was the right time to pursue fertility treatment.

I have PCOS and, as such, don’t seem to be able to conceive naturally. Again, I went to my doctor about this and again I ended up on a waiting list.

Between waiting for surgery and wanting to be pregnant, I aimed to be fitter. That seemed fairly straightforward.

Then I got one or two weeks into January and my cyst was massive and incredibly painful. I went back to the GP and got antibiotics. When they didn’t work and the cyst continued to grow and generally be unbearable, I went to A&E.

The doctor at the hospital gave the cyst a poke and a prod (which, I’m not gonna lie, had me in tears). He then told me I had a different kind of cyst to what my GP diagnosed. I was sent away with more antibiotics and told to come back on Monday.

Over the weekend, the cyst burst which sounds awful but was actually a big relief. The pressure on it was like nothing I’d experienced before.

Back at hospital, I saw a different doctor who told me I’d been misdiagnosed again and my cyst was neither the type my GP said it was nor what the other hospital doctor thought, so the referral I was waiting on was with the wrong department – apparently it was a General Surgery issue, not Gynaecology. I was given more antibiotics and sent away again.

Two weeks later, I was back at my GP because the cyst was infected again. Solution: more antibiotics. A double dose.

The cyst got worse and I went back to A&E again; going over the whole story. The triage people got someone from General Surgery to come look at me and she said she was “almost certain” it wasn’t a GS issue and should definitely be with gynae.

I was sent away with – get this – more antibiotics. It was February by this point. I’d been in pain for a month and still had heard nothing about my referral. I didn’t even know if it was with the right department anymore. The surgeon said she would talk to gynae and call me the next day to settle the issue.

She never called.

February became March and March became April, my cyst waxing and waning the entire time.

Finally, I got an appointment with General Surgery. The doctor there told me:  Continue reading

Reviewing 2017 & Making 2018 Resolutions

There is so much I could say in this post, about lots of good and bad and trying things that have happened this year, but I’ve already spoken about many of those things in lots of different other places, both as they happened and after the fact – yes, I’m a serial reflector, I confess! – and I’m going to cover what I wrote and what I had published in a separate blog post in the new year, so let’s talk resolutions. I started 2017 with six of them:

  • Get married
  • Read 50 books
  • Join the Society of Authors
  • Get a literary agent
  • and a cat
  • Take an official proofreading course

Getting Married – I did that. It was awesome! Probably enough said 🙂

In terms of books – my Goodreads goal for 2017 was 50 and (as of an hour ago, when I finished a collection of stories by Dr Suess) my total is 57. Of that, there was the usual mix of genres and formats. Audible tells me I listened to 12,760 minutes of audiobooks this year, and my most active day for listening were Sundays, apparently. My reading goal for 2018 is 52.

I didn’t join the Society of Authors or get a literary agent, so those goals have moved to 2018. But I did get a cat and (as a complete surprise to me as well as you), I ended up getting a dog as well! Giles (pictured above; bottom right) has been with us less than a week and having the time of his little life.

The proofreading course I mentioned is something I keep changing my mind about. Part of me wants to do it, but then there are other things that would be of more use to me that I want to do more, so it’s nothing I’ve followed up on thus far. It would be nice to have, but if I never complete it I won’t exactly feel sad.

Things of a higher priority on my ‘to do’ list currently are getting my driver’s license and eating a bit more healthily. I’m not intending to go on a diet, exactly, but I do want to take better care of my body.

Those are pretty much my plans for the new year. I guess we’ll see how it goes!

Herron Family Update

This year still shows no sign of calming down for my husband and I, but things are looking a lot brighter. After I put up my most recent post about Steve’s health and ongoing issues with the welfare system, in which I imparted the news we’d been told about having to wait a year for a new DLA tribunal, our objection to the first tribunal was allowed and we got a new one without having to wait after all.

So, we had a new DLA tribunal and a new ESA tribunal within a few weeks, and thankfully, thankfully (I cannot impress that word strongly enough!), we won them both. Steve also had some follow-up tests with neurology, and things are actually moving forward! Relief upon relief!!

Steve and I have been wanting to bring a new addition into our family for good, long time. And, now that things are sorted, I can happily impart even more good news: we have adopted a cat!

Sox Herron* is settling in well, and we love her.

For now and (I bloody well hope) the next wee while, things are well  🙂


*For those confused about the Herron surname: it is my married name. I write under McKee as it is my maiden name.